Collective Care Transmission Forms came from Merging of 2 track proposals - Data Feels and Pirate Observatory Track Proposer’s were unable to meet or discuss till a few days before Relearn So proposed 2 days of working through Data Feels – research focused project - and 2 days from Pirate Observatory ideas which would be more practical activity. They proposed 3 parts to the track - 1. Data Feels – is Karisa’s research project, which she is undertaking in NYC. Kym presented Karisa’s research as they have a longstanding collaboration and crossovers in interest 2. Transmitting and Receiving Care in Relearn 3. Bodily Exercises throughout the week, as small breaks We only considered part 1. Why? Karisa’s research – Collective Care groups that form online to deal with specific diseases / conditions they face - Diabetes, HSCT – was new to members of the Track and contained a lot of specific information. During the first discussions it was decided not to continue with some groups as they use Facebook to communicate. Involving Facebook would be too broad a discourse, issues of privacy and data collection in social media already being a huge topic. Too problematic for this track to incorporate when trying to discuss Healthcare as well. Decision to focus on the group Open APS – people with Type1 Diabetes who use raspberry pies, Open Source software, GitHub etc – to self regulate their insulin levels. Their Hacking approach, and use of tools that relate to those employed in Relearn, seemed a more fitting and productive route. But, then secondary discussions did not develop into action. They revolved around difficult areas – Quantification of Body Pain Self As well dealing with the grey areas of - Healthcare in the USA Legality (altering a body and a medicated prescription) Social Justice (Open APS detracts attention from the face there is no generic insulin, it is expensive) And overall the track held the position of outsider researching a group who share a common aim – to find a solution to their condition. Members of the track cannot relate – ultimately – to the specific concerns of Open APS.
* The Last Conversation centred on how physical groupings of people relies on aligned political opinion to stay ‘together’ and keep a cohesion. A question, can this be made or maintained online? How much Commonality is needed to form and sustain an online community? Discussion centred on Ethics is always difficult to move in. For tracks made in these areas what would be useful to enable action? Summaries of previous discussions in Relearn? Longer build up to allow for more thoughtful presentation and time to give responses that can then be built on More things raised in ethics - Why is the Care track nearly all women, while the Design track is nearly totally men? We are all the same race We are all able – bodied 5day all day programme relies people to give up work / only caters to those who are self employed and could be problematic for those who are carers – in whatever form. Can provisions be made for those who would struggle to attend? In all manner of forms – childcare (could be on site and dispersed throughout the group) disabled access Signing / alternative ways of reading and listening *
A poem that You should really be thinking about like a script The healthcare actor It enters the room and then Cohesion and contagion But What kind of attitude should you have? You are not here when I need you Sitting on the outside joy is Observed through the displays that are Smiling What are you doing behind the Screens? The predetermined limits Stretched in misinterpretation and entanglement of Wires interlocked and heads down to Restart and push While Implicit over explicit Defines Commitment How do you prefer to be addressed?